At the beach

At the beach in NJ almost two weeks ago now. I’ve been so exhausted I haven’t found the time to post it. In view: my atrophied legs, my (shower) neck brace, two tubes, and deaccessed port. Out of view: the beach wheelchair that got me down there and my dad, who pushed. I was glad to be in the sun, but going to the beach with ehlers danlos and intestinal failure is a lot of work. We were in Wildwood, NJ for 5 days and I only made it down to the beach twice, once with IVs hooked up. Still nice to do something normal for once.

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