One year ago today, I started TPN (IV nutrition). At the time, I had only been getting about 600 calories a day, between the little I could still eat and the formula I was getting constantly through my J tube. Within two weeks of starting, I couldn’t even get the 600 calories and became fully TPN dependent. It hasn’t always been easy, but it’s kept me alive for a year now. In that year, I have only been able to eat three eggs (for a medical test), two small pieces of potato chips, and a piece of tofu, none of which went well. I eat a ton of skittles and jelly beans, but only because they easily drain out of my stomach through my G tube. At least I’m alive and still causing trouble. In other news my SSDI hearing was delayed until January, so I have to wait even longer to get my neck (and speech) fixed. It’s only been three years since I applied.
I love the extra space now for us wheelchair users. I also love that I got to help make this happen!