I started IV nutrition (which is called TPN) on the 17th alongside tube feeds with the hope of getting the feeding tube working again. Last Saturday I was in the ER with severe abdominal pain from trying, and I haven’t been able to run tube feeds since. I have stopped tube feeds altogether at this point, and am getting almost all of my calories through the IV. I can’t eat much more than a few bites, and on a good day might be able to finish a cracker (it’s took me two days to eat 1 cracker a week ago) Unfortunately, my feeding tube is unlikely to start functioning well enough in the future to come off TPN.
I run the IVs at night, and it takes 12 hours to get the full amount. At least now that I don’t have to carry around feeding tube stuff all the time I can leave the feeding backpack home. I smile every time I stand up without being connected to it.
The plus side is now that I’m finally getting nutrition again that I will also get some energy back. I feel like I disappeared from the community in September, but I’m hoping to start reconnecting again. I also had a test this week that showed my stomach definitely is not emptying fast enough (moderate delay), which felt really validating after my GI’s letter. Psychology won’t slow the bowel down this much.